Photo Gallery

IMG_1038Brittni, age 19, says that this picture is special
to her because it “shows that I like to fully
embrace who I am and my disability.”
Brittni is 4’8″

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A family with three members affected by LS:  Jonathan (back row, left), and mother and daughter Ellen and Emily (seated, left to right).  Also pictured are Ellen and Jonathan’s mother, Edith, and Marc (Ellen’s husband & Emily’s dad).  This photo was taken in July, 2015 in Washington, DC where Emily was invited to speak at event celebrating the 25th anniversary of the ADA (Americans with Disabilities Act).

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Jonathan, age 51, standing in front of his hand-made shelf; take note of his contracted knees.  Norm Abrams, from The New Yankee Workshop, is his idol. 

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LS does not stop Dee,age 51, from living an active life.

 

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Alexa through the years.

Top photo, age 4, in spica cast after 7th surgery on knees and hips.  Bottom left, age 5, and top right, current age 26, at a family graduation.  Alexa is 4’6″ tall.

IMG_1041Hand showing spatulate (wide, flat) thumb and
long, cylindrical fingers

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Above photo shows some common foot deformities associated
with LS:  webbed (overlapping) toes, equinovarus (foot curving inward),
and syndactly of 2nd and 3rd toes on right foot  (toe bones are fused 
together such that the toes appear connected).

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Examples of Orthotics (Braces);
Left brace is a KAFO- knee, ankle, foot orthotic;
Right brace is an AFO- ankle, foot orthotic

 

 

 

Did you or a loved one with LS just celebrate a special occasion or achieve an important milestone?  If so, spread the good news.  Please email a photo and/or brief description of event to ellen@larsensyndromeresourcecenter.com.