Although LS is not classified as an illness but rather an orthopedic syndrome, there is  still a lot that might resonate with you- if you are the one with LS or  if you are the caregiver to someone with LS –  in this article by Elisabeth
Brentano that was published on 2/11/16 on the website The Mighty:

http://themighty.com/2016/02/secrets-of-people-with-chronic-illnesses/