The non-profit organization Help Hope Live can help individuals and/or families with Larsen Syndrome to raise funds for medical treatments and associated expenses such as travel or specialized equipment. There is also a dedicated Compassion Fund that anyone can make tax deductible donations to in order to support people with financial need.
To donate to the Compassion Fund: https://helphopelive.org/campaign/27474
To start a personal fundraising campaign: https://helphopelive.org/get-started/request-help/
For General Information about Help Hope Live: https://helphopelive.org
